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Endometriosis Explained: Symptoms, Diagnosis, Treatment, and Key Facts

Endometriosis Explained: Symptoms, Diagnosis, Treatment, and Key Facts

Endometriosis affects millions of women, causing pelvic pain and, in some cases, infertility. Drawing from established medical insights, we've compiled essential information to help you understand and manage this condition.

What is endometriosis?

When endometrial tissue migrates outside the uterus during menstruation, the body typically clears it away. In some women, this doesn't occur, leading to one of three main forms of endometriosis.

  1. Superficial endometriosis, featuring small spots on the peritoneum. This common form doesn't always cause symptoms.
  2. Cysts developing in or on the ovaries, leading to adhesions and reduced ovarian function.
  3. Adhesions around the uterus or between the uterus and other organs like the intestines, causing them to fuse together.
Endometriosis Explained: Symptoms, Diagnosis, Treatment, and Key Facts

Common symptoms

Symptoms vary by form but often include abdominal or intestinal pain, painful intercourse, bowel issues, fatigue, and fertility challenges. They typically align with the menstrual cycle, intensifying before or during periods.

Key endometriosis symptoms at a glance:

  • Pain just before and during menstruation
  • Painful bowel movements
  • Pain during or after sex
  • Pain when urinating
  • Abdominal pain
  • Fatigue
  • Difficulty conceiving
Endometriosis Explained: Symptoms, Diagnosis, Treatment, and Key Facts Endometriosis Explained: Symptoms, Diagnosis, Treatment, and Key Facts

What should you do if experiencing these symptoms?

If these issues sound familiar, consult a healthcare professional for evaluation. Diagnosis often starts with a pelvic exam, followed by ultrasound if needed. These tests reliably identify or rule out the two more severe forms. Superficial endometriosis may require laparoscopy for confirmation and treatment, though milder cases often recur after menstruation.

Treatment options

Hormonal therapies like the contraceptive pill—especially continuous use to skip periods—can significantly reduce symptoms by minimizing bleeding. The Mirena IUD is another option. Stronger medications exist but may have notable side effects. Start with your GP, who can refer you to a gynecologist for personalized care.

Key statistics

  • About 50% of women of reproductive age have mild endometriosis, often asymptomatic and requiring no treatment.
  • Average delay from first symptoms to diagnosis: 9.2 years.
  • 15% of cases occur in women under 30.
  • In the Netherlands, around 440,000 women are affected.
  • The condition's progression varies; some cases resolve spontaneously, others worsen.
  • Symptoms typically cease at menopause when endometrial production stops.

Risk factors

You may have a higher risk if:
• Your mother or sister has endometriosis.
• Menstruation began at a very young age.
• Menopause occurs late.
• You haven't been pregnant.
• Your menstrual cycle is short, leading to frequent periods.